Just a quick blog for update purposes and apologies as I'm doing it from my phone as it is the only way I can get any signal.
Sophie has settled into hospital really well. She woke with excitement today and couldn't wait to get to the hospital which is very rare.
After packing up half the house we set off to start the main adventure.
We started tube milk reduction yesterday and cut 2 feeds down from 260ml to 160ml each and 1 feed from 150ml to 100ml.
Today the reduction continued and she is now only having 2 feeds of 60ml via her tube. By tomorrow she will be down to no tube feeds.
On arrival at the hospital we were met by all three of sophs psychologists who she was very pleased to see. Within about 5 minutes she was taken straight down to her first therapy session.
Height on admission is: 106.7cm
Weight on admission is: 16.5kg
Think they are planning to weigh her at the end of this week but details to be arranged.
Soph has reacted well to her therapy already. She's managed to make/decorate some cakes which she gave to the nurses.
For lunch she managed half a large can of soup with full fat cream added and ate this in less than 9 minutes which is awesome!!!
She also managed to drink her mid afternoon paediasure in less than 10 minutes.
Some evidence of hunger is showing though, Sophie is becoming a little short tempered but the psychologists are pleased as they can work with her better when she shows her emotions.
Day 1 has been quite busy for her.
Things became a little more trying at tea time but will blog about that tomorrow when I can find a more reliable signal for laptop.
Best update/log I can do for today!