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Finally I've been able to blog.

It's been a rather crazy couple of weeks so apologies for leaving you all hanging on how Soph is doing. Thank you to those of you who have been in touch to check on her.

Well Sophs IVs finished a week ago today and I'd love to say she is 100% back to her normal self, but she isn't really.
I cant entirely put my finger on it. She's got energy, she doesn't look unwell but she's still really productive and coughing quite a lot. Her sputum is clear though.

She appeared to pick up a slight cold towards the end of her IVs but it didn't really progress much, but I'm wondering if this is what is contributing to this persistent productive cough. It first appeared part way into her IVs and we looked at it as a good sign. The IVs kicking in and kicking all the bad stuff out but the fact it's still present leaves me with a few questions.

1) Was the course of IVs not long enough?
2) Is something else going on?
3) Is it just viral or change in weather?
4) Is it inflammation and a course of steroids could do the trick?
5) Would oral antibiotics help?

The simple answer is phone the CF team, which I am going to do, however it's difficult to explain to the team when I cant pin point the symptoms. Other than an increased productive cough, there's pretty much nothing else going on and it was the reason we started the IVs in the first place.

*sigh*

I'll keep you all posted and if anyone has any ideas please fire them this way.

I am also preparing the blog post with all the pictures of how we do home IVs. Warning you all now it'll be a large post but mainly all visual :) You ask, i'm going to deliver!

In other news I've ventured onto twitter, thank you to those who are following me but for the ones who had no idea I'm there, come find me as I update on there much more than here and if you have any burning questions, I answer back same day.

@Sophs_mum


Leave you with a couple more pictures of Soph using my amazing camera skills :D
She had confiscated my iphone because she wanted to listen to her favourite songs and dance to them.
I see another glimpse into the future, she was too busy to even smile properly, look at the poor effort!! :D










Take care all.
xx