Tuesday, 1 November 2011

Decision made.

Next Tuesday our house is going to look like this.







We'll be mixing these ourselves again. (No pre-mixed as we feel it's always kinder to keep a pre-mixed slot open for someone who doesn't have help to mix IVs).







To do this for two whole weeks.






Joint decision between us and the team to give Sophie two weeks of IV antibiotics before the real winter sets in despite her chest being a little frisky at times, she's still fairly well and we want to keep it that way.

There was a brief mention of Ciprofloxacin orally however Ian politely told Soph's CF consultant he could have her at his house for the duration if she was going back on it :)

He declined but feels it's sensible to give her an annual blast of IVs so this is where we are at.
They are more than happy with her weight (see previous post if you haven't already), her dietician had a little giggle at the letter and said to continue as planned.
Sophie managed to do an on demand sputum sample in a pot as well as a cough swab so hopefully only MR Pseudo will be present.

Plan is to flush port next week instead of being done today so it can be accessed in one go and then start IVs.

No overnight stay which is always a blessing :)

Wish us luck as it has been almost a year since we last did battle. Sophie will be attending school the whole time too hopefully. I have a meeting with the school tomorrow morning to break the news.

Take care all :)

xxx

8 comments:

  1. Good luck with the IVs you guys.
    Thinking of you all, Lisa.

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  2. Hope the IVs go well. I've never had to mix drugs apart from meropenem and even that was a pain! So hope its not too time consuming for you xx

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  3. Yay for no overnight stay. Hopefully this will be a good swift preemptive kick in the pants, and she'll do really well this winter. Still sucks to be on 2 weeks of IV antibiotics. I hope she'll be able to continue going to school the whole time. Best of luck!

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  4. oh gosh it is soooo good to be in touch with you again :) thank you for the kind words..... I see you do not like cipro, lane recently did a round, I have heard some do not do so well on it, what was your expierience if you dont mind me asking... I look at all that IV stuff and that would FREAK ME OUT..... Hats off to you... many HuGS and Love..... Marcy LOVINLANE

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  5. It's such mixed feelings when it comes to IV's. Yay for being pro-active and kicking the bugs before they make Soph feel yucky but boo because it's such a pain in the backside! Hopefully this will set her up well for the winter and she can concentrate on having fun at school!

    Haha love Ian's response to the cipro! I can't take it because I'm allergic to it but it's such an evil drug!

    Thank you so much for your support yesterday! Very much needed! You're awesome!!!

    Lots of love!!!
    xxxxx

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  6. Keep her well:) From VB-Jill

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  8. Good on you for doing what you have to to stay ahead of things! Hopefully it goes as smoothly as these things ever can. <3

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