Monday, 12 September 2011

Don't mess with me.

Well it's finally nice to blog in a positive way (partly why I left it so long).

Sophie has improved health wise and managed to start her first day of proper school. She's now full-time doing 08.55-15.15 Mon-Fri.
The antibiotics have shifted her cough and the temperatures have gone leaving her less spicy and hot!


CF clinic went well, here's the stats...

- Weight 18.5kgs (So 2kgs gained in two months).
- Chest sounded clear so her illness was definitely viral (good news).
- Stomach was soft and palpable.
- Height is now 100.2 cm so 3 cm increase.
- Sats were 97% so down a bit on her normal as she was still poorly.
- Cough swab taken.
- Bertie had his drink (port flush).

The fibre we have been adding to Sophs milk is working and things are finally firming up and her laxatives are down to a minimum now, sooo relieved!


Sophie is handling school very well, she's really enjoying it and cant wait to get home and do her homework. Bless her my little geek! Have a feeling it probably wont last though.

We spent her first week going up to the school at lunchtimes to spy on her through the dining hall door. This was at the schools request in case of any problems with Soph's eating.
I've explained that she could get food stuck if she was to actually eat something and not chew it properly, however we don't know when or if this will happen but it's made the school feel more relaxed and it has given us chance to answer any questions from the dinner ladies and teachers.

The school really rocks in our eyes. So far so good and Sophie happily sits with her little gang of friends and at least has a few tasters of some of the lunch we have packed her. She is also taking in some money to buy toast at morning break, which she has been spotted nibbling at :)
So watch this space! We have an appointment with her eating psychologist later this month and I'm looking forward to it.

I've handed the school all of Sophs appointment letters for the month and I think they have realised the magnitude of Sophie's medical involvement now.

And finally, Sophie was playing with an older boy at lunchtime (Ian is really impressed!!) and they were running about with each other and managed to bump heads somehow.




This was the result by evening...









The following day...









Beautiful isn't it?








Ian giving Sophie her tube feed after school and Sophie doing her best "Don't mess with me I'm hard" face :D







I feel I need to hang a sign around her neck stating we did not do this to her! She's been really good about it, didn't cry and says it doesn't hurt. It looks soooo sore though!


That's all for now folks and I'm pledging to blog at least once a week now unless I have a valid reason so you all have my permission to tell me off if I don't stick to it!

Take care all and thanks for Soph's good vibes, they've worked!

xxx

8 comments:

  1. Oh my, what a shiner she has there! I am glad that things seem to be going well at school. I was thinking of you all

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  2. My kids have both had black eyes from bumps at soccer, goofing around and "Oops, there was a door frame there?" moments. I have often thought I'd like to tell everyone we see that I don't beat my children!

    And she is such a trooper for dealing with more than any child or adult for that matter, should have to handle. She has amazing strength!

    As a Reiki Practitioner, I'd like to let you know about Reiki. It's an alternative form of healing that is non-invasive and very comforting. My kids love and ask for reiki whenever they aren't feeling well or are stressed out. Many doctors, nurses, and hospitals are beginning to incorporate it into their practice (Dr. Oz is one of them). Give it a google search for more info or email me if you'd like. It's best to find a practitioner near you for treatment.

    Good luck and best wishes for good health!

    The Smile Conquest Day 82 My Fear 10 Years Ago

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  3. Hello shiner, looking beautiful. God bless you for good health!

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  4. Oooft that looks sore! Clinic sounds like it went well! You can't beat toast for nibbling at!

    xxx

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  5. So glad she is feeling better. She is such a beautiful girl :)

    I'm your newest follower on GFC from the hop. Please stop by and follow me back at http://psbeautyblog.blogspot.com. I have some really fab giveaways going on right now too.

    I look forward to reading more of your posts :)

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  6. That last photo is the BEST!! It was wonderful reading how well things are going, that's fantastic news, especially that she's putting on that bit of weight. And isn't it fantastic that she sits with her little friends for lunch, that's beautiful.

    When my son got his first black eye, I told him how cross I was with the other boy who crashed into him. So of course when a shop assistant asked him what happened to his face, he said to her "Mummy's VERY cross!" Gee, thanks son.

    xxx

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