There's always a sting in the tail.

Oh hi there!







I had absolutely no intention of leaving it so long between blog posts but a big thank you to those of you who have been in touch to check we are okay.

We have been enjoying the summer holidays as much as possible as they are flying by so quickly. Sophie starts full-time school September so not long to go now.


It's been a little bit manic round here the last week or so, Ian had his knee surgery and unfortunately there was much more damage than first thought. Rather than been up and about after a week, he is faced with not been allowed to stand on his right leg for 4-6 weeks!!
So that means crutches, no driving, and the inability to pretty much not be able to anything. He cant stand up (or should I say balance) for long enough to be able to make drinks, care for Soph etc so it's been interesting.

I've had to juggle babysitters for both Ian and Soph so I could go to work. I did leave Ian alone while I did a short six hour shift at work and my mum stopped by to check on him to find he had had to stand/wobble in the kitchen to drink a drink as he couldn't carry it anywhere :)

He has managed to adapt more now so it's not so hectic. The pain he was in was quite severe so he spent a good few days at my dads and Soph was at her nans.
I've basically had two kids with lots of extra needs to look after and juggle full-time work. It's been, well...interesting!

Things have settled now as Ian is able to get about a lot more, I'm sure cabin fever is going to set in some time soon though!

He's been going in and out of the shop to pick up bits and pieces but that hasn't gone without trouble. Obviously on crutches he doesn't have free hands to carry anything so he improvised and put his coffee and a bottle of water into his pockets to walk to the counter.
Unfortunately, a do gooder type clocked him before he could get to the counter as he takes ages and alerted the shop keeper that she should keep an eye on him as he was shop lifting :D

In hindsight I can see how it must have looked but what else was he supposed to do? Luckily our local shop know him and know he is very honest and laughed about it, but he really could have been arrested :D

Soph and I have been out and about enjoying ourselves, a small selection of photos from some of her summer fun...



Mmmmmm ice cream...







Ahh well, she did eat some!!






Silly dress up...







Fun on a giant bouncy castle...






The goat that fell in love with Soph...







How on earth does this thing work?






I think I'm getting it now...






Oh yes, result!!!









More quality time with the goat :)







Sophie's picture of me :D





She really was very proud of it, and to be fair so was I.




Look at my oral phobic little girl go with her toothbrush!!!!





She has hugely improved with this...







She has been super well for the summer and it has been a huge relief, however things have changed. Last night she had her first temperature in 3 1/2 years, a whopping 39.5 C!

She had been a little grouchy for a day or so but my brother got married Friday and we put it down to her being tired from all the goings on but we were wrong.
Her eyes started to look heavy and she became very productive.

Not a great quality picture but just look at how unwell she looks...






She has started oral antibiotics this morning and luckily she is at her CF clinic a week today and they will review her then. She'll be having her port flush done then too.

Her temp is being controlled with Calpol and it seems to be helping her mood as she hates being hot at the best of times.
Super sputum Soph is back and I'm gutted but hopeful it wont last long.
Please send her some feel good vibes that this passes without needing any IV intervention.

I wished I could end on a more positive note but I guess this is life with CF, UNPREDICTABLE.

I really hope everyone is doing good at the moment, I'll be checking in on you all later.

Take care

xxx