Tuesday, 8 February 2011

Inspiration

"You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face.

You are able to say to yourself 'I lived through this horror. I can take the next thing that comes along
".

~Eleanor Roosevelt.





I love this quote, it is so fitting for the situation we find ourselves in regularly, living alongside CF. Please pop over to Jenelle's blog, if you'd like to find some more inspiring quotes like this one.


Well again, thank you all for your love, support and prayers, something has helped. The antibiotics appear to be doing a fine job of getting little missy back to her bouncy self.
Her cough is still present but it has calmed down so much, she's stopped coughing at night, which is a major achievement.

We managed to get out and about and have some well needed exercise to help clear out those wind bags of hers. The weather is still cold here so we ventured off to an indoor play centre again, this is the best picture I could get as Sophie just wouldn't stay still for more than a second, she had energy to burn and I wasn't going to complain!!
It's taken at the bottom of a huge slide which dumps you in a deep ball pit, tons of fun!









Sophie's daddy also took her to one of her new school friends birthday party at the weekend. She had an absolute blast. It's so great to see how well she has settled into pre-school and how well she is adapting into her little social circle.

She's growing up fast.


We had to miss this weeks play picnic for reasons beyond our control, but hope to be there again next week as part of our journey to get Sophie to eat.

On Monday morning we have yet another meeting at the school. This time with the school nurse who will be writing Sophie's full care plan. The CF team and her psychology team from her eating side will also be present. I cannot get over how proactive the school are, I'm astounded by the detail and effort they are contributing to allow Sophie's school time to run fluently for all.

I'm one impressed Momma!

On Tuesday we have the port flush.

Bertie's drink wont be given the usual way though, this time we all feel that Sophie may be ready to try without any sedation. It could go either way so any positivity you have, please send our way. If it doesn't go to plan, Soph will have to have sedation and we will try again in the future.

We are doing really well with sponsorship for Ians skydive in June, we are up to £800 in donations now. I'm only updating the justgiving page when we actually receive the money from offline donations or unless someone donates online. So the total you see is alot less than we have. We are SO CLOSE to our target of £1000 so if any of you have any spare change, here is the link to donate :)...

http://www.justgiving.com/Ian-Ravenscroft


I'll leave you with one last picture. It is Sophie's homework.

Yes you heard right, homework, she's still only 3 and has HOMEWORK!

She had to get creative with different textures, I think she did really well, I only helped her with a few bits as I'm awful when it comes to anything art related.

How do you think she did??






Take care all

xxx

5 comments:

  1. Love the art! I'm unbelievably bad at art. Even my stick men are unrecognisable as stick men. Keeping everything crossed that Soph manages the port flush without any problems. I take it you'll be using emla? I will get round to sponsoring the skydive! That is an impressive total you've raised though! Well done!

    xxxx

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  2. Stopping by from Bloggy Moms and now following. Sounds like you are a very dedicated, loving Mommy! Sophie is a lucky girl. She is beautiful! Please stop by www.mommymasters.blogspot.com and follow. You can also visit me at www.facebook.com/mommymasters and click "Like". can't wait for everyone to hear my children's CD, coming soon. Sophie will love it. Thanks!

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  3. Sending you non-coughing positive vibes!

    That is such wonderful news that she's making friends at school, and that the school has been so amazing. It's great to hear.
    x

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  4. Newest follower :) Found your blog on Bloggy Moms!

    http://madeofsnails.blogspot.com/
    http://staceylovesscents.blogspot.com/

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  5. I love this blog! Please keep me posted if there's anything I can post (any sort of CF fundraisers you might participate in). I'm here from Bloggy Mom~ http://www.northjerseymom.blogspot.com

    ReplyDelete

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